Josh was born with a rare condition called Oculocutaneous Albinism. He is committed to providing others with as much information about his condition as possible, in the hopes of widening awareness. You can read more about Josh’s life in his Biography.

What is Albinism?

Albinism is a rare inherited life-long condition that occurs worldwide across all races and ethnic backgrounds. In the UK, it is thought that Albinism affects 1:17,000 although this is probably an underestimate. People with Albinism do not produce sufficient melanin (pigment) and this affects their eyes, skin and hair. There is no known way to help people with Albinism produce more melanin at present, research studies are underway.

Albinism Fellowship

Josh specifically has Type 1 Tyrosinase Negative Oculocutaneous Albinism (OCA1a) – that is, Albinism which affects the eyes (Ocular), skin and hair (Cutaneous). There are a number of other types of Albinism, some of which only affect the skin and hair. You can read more about these different types on the Albinism Fellowship’s website, and further details on the American Academy of Ophthalmology’s website.

What does this mean?

In simple terms, this means that Josh is registered blind and has very fair (white) hair and skin. Though he has some limited vision, he relies heavily on his other senses (especially hearing), which is perhaps why music came very naturally to him.

Frequently asked questions